Patient-mediated Exchange

PatientShare enables a new model of health data exchange designed with the patient at the center.

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The Problem: Breakdowns in data exchange impact quality of care

All too often, providers don't have timely access to the patient data they need. This problem is especially pronounced when patients move across healthcare ecosystems filled with many different providers and community agencies. Some providers may have modern EHR systems. However, smaller organizations may still be faxing paper records. HIM departments might be swamped trying to get records routed to every provider that needs them. Sometimes the system works, but, too often, the necessary history arrives at a specialist after the patient has been seen.

Quality of care can suffer when care teams don't have the right information to weigh in their decision-making. As a result, time-sensitive specialist appointments might be delayed waiting for records, or visits might be low quality with neither the clinician nor the patient knowing exactly what the other needs. Sometimes this results in duplicate tests or treatments, which drive up costs and increase patients' frustration.

  • By 2024, Gardner predicts that 20% of all health information exchanged among patients and providers will be consumer-mediated
  • 67% of healthcare consumers said they would consider changing providers after learning that their health record was not shareable or not available
  • 93% percent of consumers polled in July 2020 expressed disappointment in the lack of data sharing during the COVID-19 lockdown. 55% blamed their provider, 31% blamed the EHR their provider chose to use

The Solution: Enable Patient-Mediated Exchange with PatientShare

PatientShare solves this problem for consumers and care teams by establishing a secure way for patients to share their data with the clinicians who need it. This new model of interoperability is called Patient-Mediated Exchange. It puts control back in the hands of consumers. It also improves provider efficiency, enhances care outcomes, and reduces consumer frustration.

How Caregivers and Patients Benefit

The PatientShare system offers patients better control over their health information and allows them or their delegate to specify who can see what parts of their record. Patients can exchange data with current care teams and, more importantly, with any new providers they encounter. Patients can also share with their family, caregivers, and anyone else in their community network who needs access to support more integrative care.

To share data, the patient, or their delegated proxy, first creates an electronic consent. The electronic consent specifies what the patient wishes to share at a granular level. It includes details about who they want to share with and for how long. For example, they might specify sharing relevant data from their PCP with a specialist for the duration of the engagement with a specialist.  This process notifies the receiving party that they have access to the data.

Upon receiving the notification, that party authenticates themselves and receives immediate access to shared data through the PatientShare interface. They can drill down in detail within the shared data set. PatientShare also summarizes users' consents and offers an easy system to manage them. Built-in transparency lets the patient see who has accessed the data and when.

How Healthcare Providers Benefit

The workflow for providers is simplified as well. PatientShare offers paradigm-breaking easy sharing without sacrificing security. When receiving a sharing notification, providers immediately gain access to all records patients authorize them to see. There's no waiting for a fax or scan from an overworked HIM team or hunting down a misfiled fax.
Healthcare organizations implementing PatientShare patient-mediated exchange also immediately comply with ONC mandates for FHIR API-based data sharing.

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